Progression of a Hemangioma with Pictures

I’m sharing something a little different on my blog today. My daughter was born with a hemangioma under her left eye. I’m guessing that most people have little to no idea what this is…I sure didn’t at the time! Five years ago, when I was searching online for more information, I wish I would have come across a post like the one I’m about to write. I’m hoping that by sharing my experience and progress photos of my daughter’s own hemangioma, I can put some parents at ease and help educate others who are unfamiliar with what this is.

HemangiomaProgression

Shortly after my daughter was born (she is now 5 1/2), we noticed that she had a red mark under her left eye that wouldn’t go away. We didn’t think much of it until her pediatrician pointed it out at one of her regular well-visit checkups. He told us it was a hemangioma and that it was quite common, especially among baby girls that were born early and were a low birth weight. Yep, that fit our daughter’s description. She was just 5 lbs 5 oz when she was born at 37 weeks. (I was induced because my OB doctor was concerned that because she was measuring so small, she might not be getting enough nutrients from me anymore.)

So, what exactly is a hemangioma? Well, the Mayo Clinic gives this definition on its website:

“A hemangioma (he-man-jee-O-muh) is a birthmark that most commonly appears as a rubbery, bright red nodule of extra blood vessels in the skin. Sometimes called a strawberry mark, a hemangioma grows during the first year of life, and then recedes over time. A child who had a hemangioma during infancy usually has little visible trace of the growth by age 10. A hemangioma can occur anywhere on the body, but most commonly appears on the face, scalp, chest or back. Treatment of a hemangioma usually isn’t needed, unless the nodule interferes with vision or breathing.”

Our pediatrician told us that it would shrink over time and there wasn’t much we could do, other than just keep an eye on it. He was a little concerned about it’s location since it was right under her eye and could interfere with her vision if it got too big. At this point, it was still small so we didn’t worry too much. However, over the course of the next few weeks, it grew quite rapidly and even started to look “bruised” and purple underneath the skin. At our next well-visit, the doctor was surprised at how quickly it had grown since the last visit and referred us to a pediatric dermatologist. After over a week of waiting to get in (long story), we finally met with a doctor at the Indiana University Medical Center in Indianapolis. She was also concerned about it’s location near our daughter’s eye and decided to put her on a medication called Propranolol, which is a beta blocker usually used to treat hypertension, anxiety, and panic. I don’t remember many of the details anymore, but I know that propranolol had JUST started being used to treat hemangiomas within the past year. The medication had shown really great results in almost all of the infant patients it was being used on and, actually, if I remember correctly, it was one of those ‘accidental findings.’ There was a baby that was being treated with propranolol for one reason or another, but also happened to have a rather large hemangioma. Shortly after starting the medication, they saw a great reduction in the hemangioma’s size. Even though it was a new treatment, the doctor felt it was a much safer alternative than giving our daughter steroid treatments (which was the only other option and what had been used in the past). Of course, we agreed with that. Steroids have a lot of potential negative side effects when given to small children, so we were definitely happy that there was another option we could try, especially one with such promising results.

We had to take our daughter in for quite a few blood pressure checks while starting the medication and also while weaning her off of it. We were also told that we’d have to wake her up to feed her every four hours around the clock (due to the medication). Telling this to a new parent who JUST started getting stretches of sleep longer than 5 hours at a time…well, it was a bit crushing. However, we knew this was the best path to follow and we were glad to finally be doing ‘something’ for the hemangioma. It was getting so big and we were definitely concerned about her vision being blocked (plus, we didn’t know how much more it would grow before it finally started to shrink). She did great adapting to the medication (three times per day) and around the clock feedings. In total, she stayed on propranolol for about a five month period.

Anyway, with all of that said, the reason I wanted to share our story is because I wish I could have found something like this (with pictures) online when I was searching for them over 5 years ago. The only pictures I found were of severe cases and I often didn’t see many follow up pictures. I had planned to write this blog post eventually, but a friend of mine was here visiting from out of town recently and his daughter also has a hemangioma. I recognized it right away and I think they were surprised that I knew what it was. I reminded him that my daughter had one (he had forgotten) and we both agreed that not enough people know what a hemangioma is…so, I realized I wanted to share this post sooner rather than later. I showed them pictures of my daughter as a baby and they were able to see how much it has faded now. As a parent, especially of a baby girl, I think it’s reassuring to see that a large red mark on your kid’s face will eventually fade away and not be as prominent as it is right now! I’m hoping that by sharing these progression pictures, I can reassure a few other parents out there. It really is pretty cool to look back on these now, but I admit that at the time, it was a little nerve wracking. We wondered what was going to happen as she got older, how long it would take to fade, would she be made fun of or picked on at school, etc. Luckily, it has now faded so much that you would only notice it if you actually looked for it!

This first picture was taken the day she was born. At the time, we didn’t pay any attention to the red mark under her left eye, but looking back, we realize it was there all along.

Hemangioma1

A few days after we got home from the hospital, we were still unaware that this was a hemangioma.

Hemangioma2

I think around this point was when the pediatrician told us what it was, but that there was nothing we could do.

Hemangioma3

This next picture is when we started to see a lot of growth underneath the surface. You can see that it’s a bit purple.

Hemangioma4

Hemangioma5

This next picture is the hemangioma at it’s “worst.” It was taken right before we started giving her propranolol. And you can see how it could interfere with her line of vision, especially if it continued to grow any further.

Hemangioma6

I think this next one was taken after she had been on the medication for several weeks. (We started seeing a reduction in size within the first week.) The purple swelling has gone down and it’s become more flat. She’s about 5 or 6 months old in this picture.

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Ok, so this next one is just a cute picture of my daughter. I couldn’t resist! 😉 You can see that her eye is looking better, though, and it’s not blocking her line of vision as much.

Hemangioma8

Now the raised, red marks are starting to fade. This is right around 9 months old. (She came to watch me run my first official half marathon.) 🙂

Hemangioma9

This is taken around 11 months old. Not a whole lot of progress, but at this point she had been off of the medication for a couple of months.

Hemangioma10

17 months…it was really starting to become less noticeable at this point.

Hemangioma11

Probably about 18 months old here (when she finally started walking…and I do mean finally)! 🙂

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This one was taken at her 2nd birthday party. (It was also right before my twin boys were born…and the end of our quiet, peaceful days together!) You can see how much it has faded at this point.

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This one was taken around 3 1/2 years old.

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And this final one was taken just a few months ago at her 5th birthday party. If you look, yes, you can still see it under her eye…but I highly doubt anyone ever notices it anymore.

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I’m extremely happy with the end results. We are still following up with an eye specialist because she may have had some early bruising from the hemangioma that affected her eye muscles. Her left eye doesn’t seem to be able to go up as high as her right, so occasionally her eyes don’t ‘work together.’ This is called Brown Syndrome. We’re hoping over time she’ll learn how to control it better, but for the time being, we just monitor it once or twice a year. Thankfully, her vision is excellent and she sees equally well out of both eyes.

If you know of anyone that has a baby with a hemangioma, please share this with them. I would have loved to see more progression pictures like this when my daughter was a baby. Her hemangioma grew so fast and it was definitely a little worrisome to us.

If you are reading this because your baby already has a hemangioma, please watch it extremely closely in the beginning, especially if it’s near an eye. I look back now and wonder if we would have treated it from the very beginning (before it started to grow so rapidly), would she have the eye muscle issues she has now? It’s hard to say. Just know there are options out there and talk to your doctor right away if you see rapid growth. Don’t wait a week (or more) until the next scheduled appointment, like we did.

I hope this helped someone!! Did you or anyone you know have a similar experience? I would love to hear about it in the comments below.

Update 1/22/16 – It’s been two years since I wrote this post, so I thought I would share a little update. This is a very close up picture of her eye at 7 years old. You wouldn’t notice it unless you were LOOKING for it. We are very pleased!

Close up of eye after hemangioma

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LeAnn Nome

Hi there! Here's a little info about me: I've been married to my husband for over 10 years and I'm a stay-at-home mom to our three young kids (a six year old daughter and four year old twin boys). As you might imagine, they keep me quite busy! In early 2013, we decided that we wanted to be a healthier family. To do this, we cut out all processed foods from our home and we now eat only REAL, whole foods. (When we're on vacation or at someone's house, we're not quite as strict.) We also try to exercise every day. Our goal is to raise healthy, happy kids...while maintaining our own health and happiness along the way! I hope you will follow along with us in our journey.

67 thoughts on “Progression of a Hemangioma with Pictures

  1. I can relate relate to your story 100%! I have 6 year old twin girls and one was born with a large hemangioma over her left eye. She was born at 36 weeks and weighed 6lbs, 2oz. The mark showed up within days of her birth and got progressively worse. Luckily we found a great team of doctors who treated her – yes with steroids. She was on them for about 6 months and it was stunning to see the color start to fade and break up. At this point it’s still visible but pretty faint. A few people have commented on it in the past year so I know it still could be an issue although a purely cosmetic one. She had to undergo two MRI’s in the first year of her life which was so traumatic for me to witness but they revealed no further growths in her head behind her eye. I agree that it was so hard to find information or even someone who shared a similar story! Thank you for sharing yours!!

    1. Hi Nicole, so glad I shared my story! Thank you for reading and sharing yours, as well. I’m glad you were able to get good results from using the steroids (and hopefully there were no negative side effects). I wonder if you would have had your girls just one year later if they would have used propranolol instead of the steroids. I think they started using it sometime in 2008, so it was probably too new of an option for your daughter. Hopefully your daughter’s will keep fading away over the next several years!

  2. Our dd had what they called a strawberry on her side. We also called it her angel kiss. Doc said it would go down in a couple years. Actually, it took about 5 or 6yrs to disappear. However, she was not low birth weight nor was she early.
    Love ur recipes and posts! Thanks for sharing with all of us! 🙂

    1. Thank you, Sherri! So glad you like my posts and recipes. It totally makes my day to hear that from someone! 🙂 And glad to hear your daughter’s hemangioma eventually faded away!

  3. I would have been terrified… I am so glad you shared this. I am sure it will really help anyone who has a little one with a hemangioma. Thank you for sharing your story!

  4. Great share, my daughter was born with “strawberry mark” as it was called then on her elbow. It has been 19 years so I can’t even recall what arm it was. It was odd as you said to not really find much info on it. Doctor just told us to also keep eye on it for any changes in size, shape or color. I think by time she hit 8 or 10 it was gone. Appreciate the share your little one is beautiful, sure this can be very helpful to someone else 🙂

  5. So very happy I ran across this post. My daughter was born at 36wks 2lbs 15oz. But healthy as can be. Her hemangioma was probably visible at birth but we didn’t notice it until the nurse was moving one of her monitors while we were in the NICU. At the time it was about the size of a pencil eraser. Now at 9 months it’s a half dollar located on the right side of her chest and coming out like she has a baby boob. All her doctors said not to worry but about a month ago I decided to take her back in for a quick look. Glad I did as we were refered to a cardiologist and we start propranolol tomorrow. Basically they said that she could run a slight risk of lung issues because of the location. I’ve been happy about the decision to start meds, but concerned with the possible side effects.
    Thank you for this post, seeing actual results helps ease my worried mom mind.

    1. Hi Becky! This is exactly why I wrote the post. I (we) could have used this reassurance when going through this process with our own daughter. We were definitely worried, especially due to it’s location near her eye (and just being on her face, in general). And when she started propranolol, it was still a very new treatment option and I wasn’t sure what to expect. She didn’t have any side effects from it and now at 5 1/2 year old, I barely remember that she even had it! I hope you see great results with your daughter, as well! Hang in there! It will all soon be just a distant memory!

  6. Hi there!Well my baby girl is 3 months old…the day she was born 10.06.2014 i noticed a mark near her eye,just like your daughters,but the doctors in the hospital told us that it is not permanent,it will disappear,the day were passing but the mark was growing,so we decided to take her to the dermatology,when the doctor saw the mark immediately recognized that is a Hemangioma.He said that there is no need to touch it,no surgery no treatment…We decided to take her to Slovenia(We are from Macedonia,but I use to live in Slovenia before I got married) and the dermatologist told us that the hemangioma needs to be treated because is near the eye,laser surgery or with propranolol,he suggested to take our daughter to Italy in Trieste because there was a really good doctor and because there was not that kind of laser that needed to be treated the hemangioma.We came back to Macedonia,took our daughter in state hospital,they controlled her inner organs and the brain with Eho,and fortunately there were not hemangimas inside her organs or in brain,but the doctor advised us not to touch it,because she is still too young,she said they have to check it all the time…I also have been writing to other doctors via internet about the hemangioma,they also are telling me not to do anything because it will disappear 2-3 years…the hemangioma i just like your daughters just that my daughters is bigger…we don’t know what to do,since she’s very young i’m afraid to treat the hemangioma,what will you advise me,I can also send you a picture of my baby,i’m really desperate

    1. Hi Teuta! First, congrats on your new baby! Sorry to hear that you’ve been given the run around with several different doctors. I know how frustrating all of this is, especially when you’re pretty little baby girl has a very noticeable mark on her face (and most people don’t seem to understand what it is). Of course, I’m not a doctor and can’t really advise you, but…with that said…since you had one doctor already recommend propranalol, that’s what I would try to push for (or bring up with your daughter’s dermatologist again). Of course, there are some risks with it and my daughter needed her blood pressure taken every couple of days while she was gradually introduced to the medicine and again as she was very slowly weaned off of it. My daughter’s hemangioma got very deep and turned a dark purple color underneath the skin. If your daughter’s is only bright red and superficial (on the surface only), then maybe you really don’t need to do anything. However, I would definitely be concerned by the location near the eye. It mostly makes me nervous because my daughter does have eye muscle issues now that I think were probably caused by the deep hemangioma…but it’s hard to say for sure. I will always wonder if we had treated earlier, would she have those lasting eye issues?? I know it’s extremely frustrating to WANT to do something, but then no one will actually do anything about it. I would definitely bring up the propranolol as an option. Depending on how bad it is, you don’t want to waste anymore time if you could be starting a treatment plan. I am VERY happy with the quick results we saw after my daughter started on propranolol. We saw a reduction in the subdermal swelling within the first week! Good luck! I really hope you and your daughters’ doctors can come to an agreement quickly with how to proceed going forward. Hang in there!! Pretty soon this will all just be a blip in the rearview mirror!

  7. I just wanted to say thank you for this post. We just left the specialist and we are starting my daughter on the beta blocker starting Wednesday. Unlike others my daughter has it on her arm, but it started bleeding a lot so they decided to start treatment. Your post made me feel at ease because I was freaking out putting my daughter on and type of medicine so young (5 months). So Thank You!!!!

    1. Hi Jessica! So glad my post could help put you at ease! That is exactly why I wrote it. 🙂 I remember how I felt back when my daughter was only a couple of months old…a ball of nerves, for sure!! I was anxious about everything and worried about how it would affect her personality, social skills, etc. I hope you see speedy improvement with your daughter’s hemangioma now that she’s started treatment! Good luck…and hang in there! 🙂

  8. First, I would like to thank you so much for posting this. My son Austin is 8 weeks old today. He goes in to the hospital on Monday to start propranolol. I was wondering how old your daughter was when she started propranolol. I am very afraid to start the meds because of their side effects, especially at his age. My sons is also located under his eye, and has a large purple ring around it under the skin. So, the dermatologist recommended we start treatment before it affects his vision, but I am so terrified!!! How long did it take to ween your daughter, and did she have any side effects while on the meds or while weening? Will my son still be able to get his two month shots while being on propranolol? What if he gets sick? Can he take other meds? How will I know if his blood sugar or pressure drops while I’m at home giving him the meds? Sorry for all the questions… I just haven’t been able to find any answers and since its the weekend I can’t get ahold of any doctors… Ugh!!! I have not been able to sleep and am absolutely terrified for Monday to come!!! If you can help in any way I would greatly appreciate it!!! Thank you!

    1. Hi Stephanie! I’m glad you found my post. I’m trying to remember when my daughter started propranalol…it was probably sometime between 8-12 weeks and she was on it for a period of 5 months in total. She had ZERO side effects from the medicine. Of course, all kids react differently to things, but we had absolutely no issues while starting the medication or while weaning off it either. Pretty sure we started with a very small dose for a couple days, had blood pressure checked, upped the dosage for a couple days, bp checked again, upped the dosage again, and had a final bp check. She was then on it for several months…and the same procedure for coming off of it. BP testing every time we bumped the dosage down. During all of this, there was never a single issue and I would do it all again in a heart beat! (We did have to feed her every 4 hours around the clock until she got to a certain weight and at the time it seemed like torture, but we managed and looking back now it’s no big deal!) I think it took about 2 weeks to get up to the full amount and 2 weeks to wean off at the end. I’m assuming your son should be able to get all of his normal vaccinations at the regular schedule, but of course that’s up to his doctors. I don’t remember the propanalol affecting my daughter’s development in any way. The best I can tell you is that we had NO ISSUES whatsoever with propanalol and many, many babies have used this medicine to shrink hemangiomas. (When we started it, it was still very new to use this ‘adult medication’ on kids…and that was almost 6 years ago now!!) I hope you’re able to get some sleep before Monday. I know it can be stressful, but it sounds like you’re doing exactly what you need to be doing. And I definitely think starting the medicine EARLY is the best way to avoid any permanent eye damage. I still wonder if our minor delay caused my daughter to have Brown Syndrome (like I mentioned in my post). Hard to say, but the earlier you can get your son on the medication, the better for his eyesight. And you’ll probably start to notice it shrinking within the first week! It was wonderful for our daughter! Take care! (I will email you this reply as well.)

  9. This is our exact story. My little girl is 2 1/2 now And it is still there but very faint. Hers is more on the side of her nose right by the eye. I need to make a progress chart in pictures just to see the amazing changes. Thanks for sharing.

    1. Hi Elizabeh! So glad to hear your daughter’s hemangioma has faded considerably, as well. It’s amazing to look back on pictures now and see the difference! We can barely see our daughter’s now (she just turned 6), but it is still faintly there. Thanks for sharing with me. 🙂

  10. Thank you for the excellent pictures of the progression! This is exactly what I have been looking for. Reading dry medical descriptions cannot compare to seeing the actual life cycle of a hemangioma. My worry for my own daughter has now been laid to rest.

    1. So glad to hear this, Jen! This is exactly why I wanted to write the post and share our story with other parents. I hope you have a similar experience and see speedy results. 🙂

  11. Thank you so much for writing this!
    Our daughter was born two weeks ago with a very extensive hemangioma covering the lower third of the left side of her face. The medical community has been very helpful and encouraging but all I’ve been able to find online is highly technical medical information. It’s so nice to see progression pictures and hear your story in a Mom’s own words. Our little girl is also being treated with Propranolol and it’s heartening to see how quickly the treatment helped your daughter.
    Thank you for sharing the story of your beautiful little girl.

    1. Hi Rebecca! I’m so glad that I could share my story with other parents who are going through this! Like you, when I searched online for information 6 years ago, all I found was overwhelming pictures (without much follow up) and medical journals. Glad that you found this post helpful. 🙂 And I’m glad to hear your little girl is on Propranolol now. I hope she sees rapid improvement! Good luck and thanks for sharing with me. ~LeAnn

  12. Hi thank you for sharing your story and pictures. I was just at the paediatrician with my 10 week old son and have been told that a mark on his cheek is a strawberry haemangioma. It is reassuring to see the pictures of your lovely daughter and see that her mark has now gone. A lot of other pictures I saw online looked quite scary and made me worry about it. We have been told he won’t need medication at the moment but it is good to know the option is there if it became a bigger problem.

    1. So glad that the post was helpful and comforting to you. That’s exactly why I wanted to write it! 🙂 Thanks for sharing with me. Hope your son’s fades away as well as my daughter’s has over time. 🙂

  13. Hey there! I really appreciate your post! My daughter was born 5/31/15 and was ten weeks early. She has a rather large hemangioma that they have decided to treat using tbe proplanalol starting tomorrow while she’s still in the NICU. Luckily it’s in her scalp but I’m glad to have a visual to help assure me that the medication was a good option! Thanks!

    1. So glad you found my post and it helped put you at ease! That’s exactly why I wrote it. 🙂 I hope your daughter’s treatment goes smoothly and you see results right away!

  14. Thank you so much for posting this! My daughter has one next to her right eye. It looks like a dove:) I’ve heard of so many other parents using that medication and I’m really considering it. My daughter is 11 months old and the swelling under the hemangioma has gone down and I can tell the redness is starting to break up…lately it has a yellowish tint to it which made me Google it and that’s how I found your post. I’ve had so many people (like every time we go into public) say “Did she fall? What’s that mark on her face?” At first it didn’t bother me but now I want to punch everyone! I want to say “Can you notice her beautiful blue eyes instead?” Anyway thank you for posting pictures! This is the first blog I’ve seen with progression pictures and from a first time mom who also knew nothing about hemangioma I really appreciate it 🙂

    Brooke

    1. This is exactly why I wrote the post! When I googled all of this back when my daughter was a baby, all I could find was medical pictures/websites and rarely any similar to my daughter’s. (They were usually more extreme.) I figured it would be nice to show other parents what the hemangioma might look like over a period of several years. Glad you found it helpful and encouraging! 🙂

  15. Thank you so much for sharing your experience! My 5 month old daughter was just diagnosed with a hemangioma near her eye and we’ll be starting propanolol next week. She was over 40 weeks and almost 8 lbs at birth. We’re scheduled to see a pediatric ophthalmologist next week, as well, to make sure the hemangioma has not effected her vision. It’s scary and overwhelming and I’m very nervous about starting the propanolol, so it was reassuring to read your post and see the progression pictures of your beautiful daughter. I think one of the other respondents asked about any side effects — besides the Brown Syndrome — did it effect your daughter’s development in any way, or delay any of her baby milestones? My daughter is a good sleeper and I’m a little worried it’s going to mess with her sleep. She only has to take propanolol twice a day, so I’m hoping it won’t disrupt her sleep that much, but we’ll obviously adjust anyway we can for her! Thanks again for sharing!

    1. Hi Kate! Glad you found my post…and that it was helpful and reassuring for you! Exactly why I wrote it. 🙂 No, the propranolol did not affect my daughter’s development in any way. I will note that she didn’t take her first steps until after she was 18 months old…SUPER late…BUT…that was just her. She just didn’t want to walk! She runs races and plays all sorts of sports now, so in the scheme of things, walking late was no big deal. I think she was focusing on language, because she had over 50 words at her one year check up and was talking in complete sentences very early on. 🙂 The medication didn’t affect my daughter’s sleep either. When she first started, due to her weight, we had to wake her up every 4 hours to feed her, but once she hit a certain weight, we didn’t have to do that anymore and she quickly started sleeping 12-13 hours per night! The medication definitely worked well for us! Hope your daughter responds similarly. Good luck!

  16. My granddaughter just started propranolol five days ago she is four months old. She is having diarrhea and stomach upset. Her hemangioma is in the same place as your daughters was. Has anyone else ever had diarrhea and stomach upset while using propranolol?

    1. Aw, I’m sorry to hear that your granddaughter isn’t feeling well. I wonder if maybe she has a virus or something totally unrelated to the propranolol?? I’ve never heard of anyone else dealing with that when starting…but I’m no expert either. I hope she’s feeling better already!

      1. Hi,
        My daughter has the same problem.She is on medication from 4 month old and now she is 6 month old. I hope the taste buds are grown and not taking the medicine properly because of taste. She is trying to refuse it. Can you please help me to come over this?[I used give her with my breast milk. that is 1 ml medicine + 1 ml breast milk.]

        1. Hi Sujatha, Sorry to hear your daughter is refusing the meds now. Maybe it was just a quick phase? We gave our daughter her medication in a bottle, usually mixed into her first ounce of formula, because we knew she would suck it ALL down immediately and then we could give her the remaining milk, knowing she already took the full Rx amount. Not sure I’m going to be much help…but hopefully she’s already moved past the issue and is drinking it again!

          1. Hi,

            Thanks for the reply. We try the same. And your information is really helpful.Because before we starting medicine I read your blog and I am very relaxed. This is really useful.You did a great job.

  17. Thank you for posting this.my son has this as well and seeing internet pictures really freaks me out. You put my worries to rest and educated me as well regarding this.

    1. Seeing all the internet pictures when I was searching several years ago is definitely what prompted me to write my own post about our experiences. Glad you found it reassuring! 🙂

  18. This is so helpful, thank you so much for sharing this. My little girl is 6 months and has a hemangioma under her left eye which appeared at 2weeks, thankfully it isn’t currently in her field of vision and we think it has stopped growing so haven’t needed to go down the medication route. we have been told by the doctors it should be gone by the time she is around 2, when I asked if there would be a mark left they said probably but just very faint and I couldn’t visualise it, so it is great to see the outcome in reality. Although I dont dwell on aesthetics some smaller children have noticed it and gotten upset or said they didn’t like it (much to the dismay of their apologetic mothers) so I was really worried about her getting older and it affecting her confidence.
    Seeing this post has really made me feel positive. Thanks again for sharing pictures of your beautiful daughter ?

  19. Leanne,
    Thank you SO much for posting this blog entry. You have eased my heart of a lot of worry. My daughter is 6 weeks old (was born at 37 weeks) and weighed 6.07 pounds. We started noticing a red mark on her lip when she was two weeks old. We went to the doctor and they told us it was an angel’s kiss and there was no concern. At 4 weeks it started swelling and our pediatrician told us it was a hemangioma and referred us to a plastic surgeon. Last week we went back to the pediatrician as nursing has become an issue because of the swelling and not being able to latch on. We go to great plastic surgeon tomorrow and hope to get some answers. Your entry has made me feel somewhat educated and prepared for our appointment tomorrow. So thank you for sharing! I would love to communicate with you some more through email if you wouldn’t mind? Please let me know of, thank you!

    1. Hi Britney!
      So glad I could help ease your worries a bit! I remember the feelings of ‘not knowing’ either…and when I searched online over 6 years ago, all I could find were worst case scenarios and rarely a whole lot of follow up. I’m so glad to know I’m helping put other moms’ worries at ease a little! Your daughter will get through this and someday you’ll probably look back and it will all seem like a ‘blip on the radar.’ I rarely think about my daughter’s now because I can barely see it…but it always surprises me when I look back at pictures and I see the hemangioma at it’s worst. Sorry to hear your daughter is having trouble latching on now. That would definitely be an issue that needs addressing asap! Sure, you can absolutely email me, if you’d like! My email is realfitrealfoodmom@yahoo.com. I hope all goes well at your appointment today and you get the answers you were looking for! ~LeAnn

  20. Thank you so much for sharing your helpful advice. I am Ali from Iran. My daughter is in his left hand hemangioma. After reading your good notes. I am relieved. Now I know what to do.
    Thank you very much

  21. Thank you for posting. My daughter is 3 months old and was born at 34 weeks. She has 2 fairly large hemaginomas and 1 tiny one. The large ones are on her bottom and scalp. The scalp is the size of a nickel and the bottom one is the size of a quarter. They are both raised. Dr. Is saying not to treat it. He said to just watch it. Thoughts?

    1. Hi Gina! I know most doctors don’t recommend treating a hemangioma with medicine unless the location of it would interfere with normal functions…like around the mouth/nose/eyes, etc like my daughter’s. I had a friend who’s baby had one on her scalp and they never did anything for it either. They just waited for it to fade away and shrink over time. And your daughter’s will, too! 🙂 It’s frustrating not doing anything….but we wouldn’t have treated our daughter if it weren’t for the fact that it was interfering with her vision. Good luck! Glad you found my post helpful. 🙂

  22. Thank you for sharing your daughter’s progress of hemangioma – extremely helpful and informative. I have 8 weeks old twin girls and one of them has the hemangioma on her left hip, on the side that we are not doing anything. However, today I noticed a faint redish mark on her eyelid (on the same twin). It could be just me over analyzing a scratch but I’m keeping an eye on it. Based in your research, could hamngioma appear on two different spots? Thank you again!!

    1. Hi Ingrid, I think someone can have hemangiomas in more than one spot…in fact, I feel like I’ve read before that it’s very common to have multiple in different locations. Like you said, just keep an eye on it and if you notice that it’s growing, then you’d want to call the doctor right away to confirm. You definitely don’t want to waste time when it comes to a hemangioma around the eye area. I hope it went away on it’s own, though, and was just a scratch!

  23. Hi Leanne! Thank you for posting your story. You have a beautiful little girl! My daughter was born just yesterday with, what we think, is a hemangioma in the same spot as your daughters. I was wondering if during any of your ultra sounds were they able to see what turned out to be her hemangioma? Also would you mind if I sent you a picture of hers just to get your opinion? Thank you again for sharing your story!

    1. Hi Sean! Congrats on your new little girl! We never saw our daughter’s hemangioma on any ultrasounds and no one recognized what it was on her eyelid until probably her one week checkup. Sure, you can absolutely send me a picture, if you’d like! I’m not sure how much I’ll be able to tell you, but I can at least compare to my own experiences. You can send me an email at realfitrealfoodmom@yahoo.com. Take care! ~LeAnn

  24. I’m a first time mom and my daughter was born at 38 weeks and weighed 5lb 13oz. Her hemangioma showed up a couple of weeks after she was born and it is almost in the middle of her forehead but slightly on the inside near her eye. I am just like you and have the concern of people seeing her mark rather than her. It does bother me sometimes but I know it’s apart of her right now. We are planning to get a second opinion about what to do to start shrinking the size of it. It is not a large one but I’m afraid that it’s big enough that she might make her eyes look more at the mark rather than at other things around her. This post really gave me some reassurance that there is hope and help to shrink it. Your daughter is beautiful and thank you for sharing. You definitely made me feel better and put my worries to ease.

    1. It’s hard when your little girl has such a noticeable mark on her face, but it will soon be a ‘thing of the past’ and you’ll barely even remember she had it! So glad my post could help put you at ease a little! Good luck with whatever you and your daughters’ doctors decide to proceed with (even if that includes doing nothing). Thanks for sharing with me, Kellyn!

  25. Hi. I am anu from india.my daughter is 9 yrs old and she have heamengeoma on the tip of her nose.it was more reddish when she was small.its not fade much.our pediatrician told that it will fade away.but since it is in face i am so much worried.is there any treatment .can u pls help me.

    1. Hi Anu! I wonder if there is some way it could be treated with lasers?? I’m not at all well-versed on this issue, but have you tried seeing a dermatologist? I think someone that specializes in treating the skin would have a better idea of how to remove something that doesn’t seem to be fading on it’s own. I agree, that by 9 years old, you’d think it would have faded more. Sorry I can’t give you any more advice. My daughter was treated with propranolol as a baby, but since your daughter is past that stage, I don’t think it would do any good at all. Good luck! I hope you find something that works for her!!

  26. Thank you for writing this and including pictures! My daughter started propranolol today, she is 17 weeks old. It’s in a very similar spot to where your daughter’s was, and may start blocking her vision. Hopefully we caught it at a good time and hopefully it doesn’t take long to start to work. Thanks again, great to have this as a resource!

    1. So glad you found the post helpful, Stephanie…and also glad to hear you’ve started your daughter on propranolol! I hope you have great results, as well! Thanks for sharing with me. 🙂

  27. Hi Leanne, thank you so much for the very informative blog about this kind of birthmark. Finally my worries will put to rest. My daughter is 7 weeks now and has strawberry hemangioma on her right forehead. Hopefully it will fade on its own before she start schooling to avoid bullies.

  28. I can’t tell you how much this helped! My almost three month old has one in the corner kind of side of his nose on the left eye. I made the mistake of googling and ended up in tears thinking about all the worst case scenerios thank you so much for posting this. It’s almost identical to my sons. We have a appointment for nov. 18th to see a specialist but I may call to get in sooner because it has began growing rapidly. I read the side effects to the treatment you mentioned and was terrified but hearing it here has me much less concerned about the blood pressure issue. You have put this overly emotional mama at ease thank you!!!

    1. Hi Abby! So glad you found my post…AND that you found it to be reassuring!! We were so worried when we first found out what my daughter had growing under her eye and, like you, I ‘googled’ it and didn’t like what I found. Once we were years past all that (and I had my own blog), I realized I wanted to share our story so other moms could see the progression with pictures over several years! I was nervous about her taking the propranolol, as well, but I’ve heard SO many good things about it since we used it and it works so quickly, too!! Good luck! And thank you for sharing your story with me. 🙂

  29. We went through the exact same thing with our daughter. Happy to hear there’s a happy ending to this worrisome episode. Thanks for sharing! I have one question for you… Did your daughter stop taking propanolol before the hemangioma was completely gone? If so, was there a chance of it coming back?

    1. Yes, she stopped taking the propranolol before it was entirely gone. In fact, you can still see it under her eye now, very faintly, if you look hard. (But no one would notice unless they knew what they were looking for.) Once she got past a certain age, that’s when hemangiomas typically stop growing anyway, so we were never concerned with it beginning to grow again.

  30. Hi!

    I havent found very much information of hemangioma on my motherlanguage ( Finnish) but your post was something what i was hoping to find :). Big thanks for sharing! I have 8 months old daughter and she has hemangioma too and we have been thinking can it be treated somehow! We have been talked with our doctor and we are now waiting results of blood samples.

    1. Hi Jenni,
      Sorry for the long lapse in responding. I no longer receive notifications on my older posts, but I appreciate you reaching out to me and glad you found my blog post helpful. I hope you have been able to get your questions answered by your doctor and all is going well for your daughter!

  31. I just want to thank you so much for your post and pictures! Your daughter is so pretty! My daughter has the same thing on her left eye,and we are going to check with the dr next Tuesday,I was hopping to watch your post earlier then we can do something earlier, but still, not too late, and your post makes me feel much better! You must understand how mommy is feeling for this! Thank you so much!

    1. Hi Kun! So glad you found the post reassuring. And, yes, I do know how you feel…which is exactly why I wrote the post. Hope all has gone well with your daughter! (And I apologize for responding so late. I no longer get comment notifications on older posts. I need to see if I can change that!) Take care! ~LeAnn

  32. I just wanted to thank you and let you know that your blog is still helping parents with babies with potential hemangiomas. My 8-week-old son has one near the center of his forehead / to the right of one eyebrow and I couldn’t tell if it had grown or not until I looked at pictures this evening. I’m calling a pediatric dermatologist on Monday to try to get an appointment. Thank you for including pictures, and I’m so glad your daughter is doing well.

    1. Thanks for the comment, Laura! My older posts don’t send me notifications anymore when I get a comment, but I appreciate hearing from you and knowing that you found my blog post reassuring. I hope all has gone well with your little boy since making an appointment with a dermatologist!

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